The internet offers wonderful ways to connect with other people’s stories, share ideas, ask questions and find support via online support communities.
Online support communities have grown in recent years and we encourage you to consider becoming part of an online support community. This list is not inclusive. If you find a group you’d like us to list, please contact us.
The advantages of belonging to an online support community? You can post at any hour of the day or night. You learn about national and international information, events and therapies. You are sure to find someone whose situation or life experience speaks to you. If you’re not ready to join a face-to-face support group (and for many folks, it takes a while) or need to pose an anonymous question, it’s a good way to connect with others with PD and feel heard, ask questions and glean useful tips. Even better–why not meet local folks, in person, who can offer support in face-to-face groups!
- Patients Like Me: over 4000 people with PD gather to discuss living with PD
- Discussion Corner; National Parkinson Foundation: includes specialty areas such as ‘Ask the Doctor’, as well as a place to chat with others
- Young-Onset Support Board; Young-Onset Parkinson’s Association
- Movers & Shakers (young-onset group): look to the right for live chat and a message board
- BrainTalk Parkinson’s Disease Chat Room
- MDJunction: Parkinson’s Discussion Forum
- People Living with Parkinson’s Message Board
- Parkinson’s Caregiver Information Forum: a site specifically for people who care for someone with Parkinson’s disease
- Person-to-Person (P2P) and Caregiver to Caregiver (C2C) are, respectively, support sites for folks with young-onset PD and young care partners.
Blogs are on-line journals that offer the chance to comment and interact with the author. Many people keep blogs about living with Parkinson’s disease.
- Parkinson’s Blog Network: Something of a one-stop shop for blogs by folks living with PD
- Shake, Rattle & Roll: an insider’s view of PD & DBS: Kate Kelsall
- Off & On: a blog by person with Parkinson’s & cartoonist Peter Dunlap-Shohl
- Day by Day with a Movement Disorder: Rosemary
- John Baumann’s Blog