Your Voice – from our Parkinson’s Community

Your Voice

Your Voice showcases articles submitted to the Parkinson Center by professionals in the Parkinson’s community. When we are passed on informative articles or experiences, we will post it here!

Resources

  • Know the Signs – Is Parkinson’s Progressing?

    Know the Signs to Help Understand If Parkinson’s May Be Progressing — Increased motor fluctuations may be a reality for people as their Parkinson’s disease progresses.

    More “Off” Time, Less “On” Time

    As Parkinson’s disease progresses it may be harder and harder to control motor symptoms. You may notice more periods of slowness, stiffness and impaired mobility when medication is not working optimally (known as “off” times) and decreased time, when medicine is providing benefit ... Read more...

  • Parkinson’s Disease Infographic

    Rebecca, a registered nurse, emailed us:

    “… I can see that this topic does matter to your readers and that is why I am contacting you. Did you know that April is Parkinson’s Disease Awareness Month? Because of this, I decided to put together an infographic about PD as well as write a detailed overview about the disease, that affects more than 11 million people worldwide.

    You can see my article and infographic here – ... Read more...

The Voice of PD

  • Gift from the Thief

    By Sharon Bowers

    After being in a place where I had everything in order, I became angry and depressed because the thief, Parki, stole my confident self. All I could think about was how bad this feels . . . on so many levels.

    Fast forward nearly two years. Wow! The lessons I have learned and soaked in feels like a bubble bath calming my whole being.  In my quieter, slower paced life, I realize ... Read more...

  • The Thief of My Confidence

    By Sharon Bowers

    Phones ringing, files waiting, patients checking in, charts being reviewed, doctors requesting things, cards copying, machines buzzing, and myself running never sitting is a typical day of my life at the office where I work.  The stress level is high and intense as I juggle the doctor’s schedules, the appointments for medical tests, insurance verifications, nurses’ letters and test results.

    Whew! That was a glimpse of my former work life! At the ... Read more...

  • Ready to Stop Feeling Guilty?

    By Elaine K Sanchez

    Have you ever felt guilty for taking a break from your duties as a caregiver? If so, you are not alone. According to a survey of 1,000 caregivers, 54% stated they felt guilty when they spent time doing something for themselves.*

    I received an email from a woman a few weeks ago whose husband had just died. He’d had ALS, and during the last three years of his life, he couldn’t ... Read more...

  • I have Parkinson’s – Genevieve White

    It is so sad that even today the medical world does not recognize signs of Parkinson’s. Early detection is so important! If I only knew then what I know now; studies have shown that exercise is so important to the disease and slows the progression.

    Family and friends early on (late 40’s) started to notice that something was wrong with me. I will never forget my Aunt Lois saying, Genny the doctors are not ... Read more...

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