Your Voice – from our Parkinson’s Community

Your Voice

Your Voice showcases articles submitted to the Parkinson Center by professionals in the Parkinson’s community. When we are passed on informative articles or experiences, we will post it here!

Resources

  • Know the Signs – Is Parkinson’s Progressing?

    Know the Signs to Help Understand If Parkinson’s May Be Progressing — Increased motor fluctuations may be a reality for people as their Parkinson’s disease progresses.

    More “Off” Time, Less “On” Time

    As Parkinson’s disease progresses it may be harder and harder to control motor symptoms. You may notice more periods of slowness, stiffness and impaired mobility when medication is not working optimally (known as “off” times) and decreased time, when medicine is providing benefit ... Read more...

  • Parkinson’s Disease Infographic

    Rebecca, a registered nurse, emailed us:

    “… I can see that this topic does matter to your readers and that is why I am contacting you. Did you know that April is Parkinson’s Disease Awareness Month? Because of this, I decided to put together an infographic about PD as well as write a detailed overview about the disease, that affects more than 11 million people worldwide.

    You can see my article and infographic here – ... Read more...

The Voice of PD

  • Ready to Stop Feeling Guilty?

    By Elaine K Sanchez

    Have you ever felt guilty for taking a break from your duties as a caregiver? If so, you are not alone. According to a survey of 1,000 caregivers, 54% stated they felt guilty when they spent time doing something for themselves.*

    I received an email from a woman a few weeks ago whose husband had just died. He’d had ALS, and during the last three years of his life, he couldn’t ... Read more...

  • I have Parkinson’s – Genevieve White

    It is so sad that even today the medical world does not recognize signs of Parkinson’s. Early detection is so important! If I only knew then what I know now; studies have shown that exercise is so important to the disease and slows the progression.

    Family and friends early on (late 40’s) started to notice that something was wrong with me. I will never forget my Aunt Lois saying, Genny the doctors are not ... Read more...

  • Why Am I Angry? Let Me Count the Ways!

    By Elaine K Sanchez

    When my friend Emma told me that her husband had been diagnosed with Parkinson’s, my heart sank. We agreed to meet for breakfast. When we sat down, I put a large manilla envelope on the table. She said, “What’s that?”

    When I explained that it was filled with wonderful information and resources for people who were living with Parkinson’s Disease, she pushed it away and said, “This is Ted’s disease. It’s ... Read more...

  • Shaking Up Awareness – Essential Tremors

    My head started shaking at 11. I was diagnosed with Essential Tremors (ET) at 13; I am now 25. Growing up with ET has not been the easiest journey to say the least. Simple activities like eating, studying, dressing and watching TV have become strenuous and painful. My tremors, which started at my head, have spread into my vocal chords, down to my shoulders, hands, and legs.

    I receive regular Botox injections in my ... Read more...